PURPLE HOUR
Creating a space where teens with epilepsy feel seen, heard, and supported
Why Purple Hour Matters
Teens with epilepsy often feel lost in the crowd: 67% of the population don’t even know what to do if a peer has a seizure, and nearly half feel stigmatized. Over 60% want to talk to someone who understands them, yet most have no peer support. These stats aren’t just numbers. They reflect real struggles, real loneliness, and a real need for connection.
STIGMA AND ISOLATION
42% of youth with epilepsy reported stigma, and 65% reported stress due to low awareness in a public survey
PEER SUPPORT
A major NIH review found 62-64% of young epilepsy patients wanted to talk to peers with seizures.
MENTAL HEALTH BENEFITS
A 2023 survey revealed that most had no peer support and believed having so would improve mental health, coping, self-management, and reduce loneliness.
VOICES FROM REAL TEENS
“I don’t know anyone with epilepsy…no one in my life will ever understand how I feel.”
“I wish I had friends 17-24 who I can just vent to about young adulthood and epilepsy.”
Join Us
Purple Hour is a monthly space for teens with epilepsy to unwind, connect, and feel understood. Through creative meetups, care kits, and cozy community vibes, Purple Hour gives teens a place to just be.
We meet once a month online, with a new activity or theme every time. Sometimes we craft, sometimes we just chill, but always with intention. Between meetings, we send out care kits filled with small things to lift you up when you need a little support (or just a good distraction)
Discover More
- The Science of Seizure Auras: What They Mean & Why They Happen
- Photosensitivity Explained: What’s Really Going On with Flashing Lights
- Why Epilepsy and Sleep Are So Connected (and How to Actually Rest)
- Peer Support > Google: Why Talking to Other Teens Beats Searching Symptoms
- Art as an Outlet: Creative Ways to Cope with Epilepsy