We meet once a month online, with a new activity or theme every time. Sometimes we craft, sometimes we just chill, but always with intention. Between meetings, we send out care kits filled with small things to lift you up when you need a little support (or just a good distraction)
42% reported stigma, and 65% reported stress due to low awareness in a public survey
A major NIH review found 62-64% of young epilepsy patients wanted to talk to peers with seizures.
A 2023 survey revealed that most had no peer support and believed having so would improve mental health, coping, self-management, and reduce loneliness.
"I don't know anyone with epilepsy...no one in my life will ever understand how I feel."
"I wish I had friends 17-24 who I can just vent to about young adulthood and epilepsy."
Welcome to Our Support Group If you are a teen living with epilepsy, we understand the challenges you may face. That’s why we have created a dedicated support group that meets once a month, providing Read more…